
Today I ran across twelve old vials of Leukine (sargramostim) is a recombinant human granulocyte-macrophage colony-stimulating factor. Which was the study drug used along with the FDA approved drug named Rituxan. My magic bullet to becoming stable.
Why I never threw away the vials I don't know. Maybe because the two drugs together did give me a good stable situation with the lymphoma. It can't be cured so stable is where I wanted to be.Praying my bio chem panel of blood work still is good. Waiting on that.
The past few days I have felt very fatigued and lots of problems again with my joints. All limb related. I have been really cranky I admit it. Mainly because the my hip ,knee and ankles where I know I have ostero penic issues and thats the pre cursor to osteo athritis. As well as the up and down Michigan weather panterns I have been miserable the past week. I have meds so making sure to keep up with them but debating that we might need a change up to deal with the pain issue. Least at this point its not osteo prosis and I have ran the route of un explained fractures to so that is no fun.
It kinda brings me to this. Yes I am stable but no cure. I am lucky a heck with stage 4 to be stable and for whatever reason, I have felt so blessed no matter how crappy I feel some days. I always wonder what if there was no research and no trial drugs. I wouldn't be here. So maybe keeping the vials reminds me of the journey back to stable. On a day like today. I really shouldn't complain besides who wants to listen any ways.:)
3 Nudges:
Interesting about the vials ...
It is hard being stage 4 and don't feel bad about complaining. There are people who don't have any threatening illness that complain for no reason.
In other words, don't be afraid to share your feelings ... good or bad.
Kerry, I appreciated your very excellent and accessible reprint of the lymphoma explanation. I have a rare t-cell form of CLL for which the term "cure" is never applied even though I am on my 88th month of survival. I just added you to my Cancer Blogs Link Page, Take care, Dennis beingcancer.net
Sorry to hear you sound down. Listen, if you go to www.lovehopestrength.org, this is a global charity set up by a rock guy who has battled leukemia twice, 2 different types. It may help.
Love & Life xxxx
Post a Comment