Wednesday, July 15, 2009

Gut Feelings.


So often with cancer there are so many things that happen to us. I am looking for the words to as a survivor to share with those fighting now.
I remember for a while not dealing with my first surgery at all till I was done with my first go around with chemo. I remember thinking surgery is done lets move on. Not giving any thought to them opening up my the left side of my face and exploring to she what the exact problems were. Sure this told me what kind of cancer. But the word cancer is so huge it kicked me back...only thinking what do I need to do to get rid of it.
I also thought back to the doctors and I use the word loosely, who said it was in all in my head that I felt this incredibly tired and sick. Amazingly they found the cancer in my head due a mass that had formed in my left Parotid Gland and the lymph nodes surrounding it. However it was wide spread and stage four and terminal.
I also have had to deal with the doctors and how they handled my case. Once I got to the Surgeon and Oncologist...which had I not pushed for a surgeon I wouldn't be typing this. My Surgeon and Oncologist both agree that my case was not a normal one but should of been caught by one of the four primary doctors I saw on a cbc or a bio chem panel. It was not.
Thank God for my Surgeon who agreed that this mass was not a cyst and it was not in my head since my per op blood work and white counts were in the toilet at a mere 1.5.
when my last test was at 3.0. So there was a huge issue looming.

So I am writing this to say if your reading this and your trying or fighting this disease. If you are not sure of something *ASK* demand action on your part. It might just save your life to do so. IT did mine.

When I think back I am so happy I went with a gut feeling there was something going on they were not seeing. I also had a skin specialist tell me all I had was a cyst on my face as well. I was annoyed having had one before I knew in my gut this was growing to rapidly to be a simple cyst. I was annoyed at how they passed me off when I left the office. I said screw it and went back in and asked for a name of the best plastic surgeon they had. That one action I believe saved my life.

So that said..if your not sure of something pertaining to your health Ask and demand answers. I know its hard and I know at times we do not want to rock the boat. But a good rock is what they need to do what needs doing ..Then go for it. If a doctor isn't willing to give answers or fight for you to find the info. MOVE ON!

If this post saves one life then I have done my job as a Survivor.

2 Nudges:

Sara Williams said...

That is such a good message to put out there. These doctors are playing with our lives, it is true to follow your instinct and your heart and fight for what you feel is the best.

I am so glad you did fight xx

Daria said...

Excellent post ... this is one time woman have to assert themselves.